Cayenne Wellness Center Community Engagement VISTA

CWC's mission is to increase the quality of life for individuals diagnosed with sickle cell disease (SCD) in California by ensuring expert, unbiased, and comprehensive care. This mission is part of a broader vision of (1) a medical system which effectively addresses the unique needs of individuals with sickle cell disease and (2) patients who are empowered and equipped to advocate for themselves.

The Community Engagement VISTA will support CWC's mission to enhance the quality of life for individuals living with SCD across California. This VISTA position will drive volunteer recruitment, civic engagement, and advocacy efforts, particularly focused on underserved communities disproportionately affected by SCD.

The VISTA members will build and maintain sustainable volunteer engagement systems, manage a growing volunteer database, and recruit individuals from diverse backgrounds, including SCD warriors and caregivers. The VISTA will develop targeted outreach campaigns, form partnerships with corporate and community organizations, and ensure that all volunteers are trained and supported in alignment with CWC's mission.

The Community Engagement VISTA will coordinate two major statewide advocacy events¿The Policy Forum (National Advocacy Day) and The Capitol Visit (Statewide Advocacy Day)¿to mobilize patients, caregivers, and community members to improved healthcare and equity in SCD care. Through careful planning and execution, these events will amplify the voices of those impacted by SCD and advocate for individuals with SCD.

By organizing volunteer training programs (e.g., Sickle Cell 101) and improving demographic tracking and reporting, the VISTA member will leave behind strong infrastructure and systems to support future recruitment, community education, and civic engagement work. This project aims to create long-term impact by empowering community leaders, strengthening partnerships, and fostering advocacy to reduce disparities in sickle cell care.